Category: QS Access Conversations

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Diabetes Data For All

May 1, 2015

Howard Look is the Founder and CEO of Tidepool, a non-profit, open source development organization dedicated to reducing the burden of type 1 diabetes by building a platform that can integrate all diabetes device data in a single location. Most importantly, he is the father of a daughter with type 1 diabetes. Howard understands the…

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Open Research, Open Data, Open Humans

March 25, 2015

“Open Humans aims to break down data silos in human health and research. We believe data has a huge potential to live and grow beyond the boundaries a single study or program. Our online portal allows members to aggregate data from the research they participate in. By connecting individuals willing to share existing research data…

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Better by Default: An Access Conversation with John Wilbanks

March 10, 2015

John Wilbanks is the Chief Commons Officer for Sage Bionetworks. You may not recognize John’s name or the name of his organization, but after today, you may want to commit it to memory. On March 9, 2014 Tim Cook introduced us to the idea of ResearchKit and then turned it over to Jeff Williams who described the new…

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What is in My Gut?

March 5, 2015

This past fall we learned about a unique study, conducted at Stanford University, designed to contribute to the understanding of the human microbiome. This study also has a component not common to academic research — data is being returned to the participants. Intrigued, I contacted the principle investigator, Les Dethlefson, to learn more. Ernesto: Tell me about…

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Do It Yourself Diabetes

February 17, 2015

Dana Lewis and Scott Leibrand are the creators of the amazing “Do-It-Yourself-Pancreas-System,” also known by #DIYPS. We had a few question for them.

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My Device, My Body, My Data

February 4, 2015

In 2007, after collapsing while rushing to board a train, Hugo Campos was diagnosed with hypertrophic cardiomyopathy, and an ICD (implantable cardioverter defibrillator) was implanted in his chest to track and regulate his heart rhythm. To his great surprise, he discovered that it was very difficult to gain access to the data being generated inside his…