Category: QS Access

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QS Symposium on Cardiovascular Health

December 15, 2017

We are organizing a QS symposium on cardiovascular health for scholars and researchers and participants in the QS Community. The goal of our meeting is to support new discoveries about cardiovascular health grounded in accurate self-observation and community collaboration. This one-day symposium will be held on Thursday, April 19, 2018 at the University of California, San Diego.

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QS Access: See Your HealthKit Data in a Table

September 16, 2015

A year ago we released QS Access, a simple app that allows you to see your healthkit data in a table. Our idea was to make it easier for people to explore their data using familiar tools, such as Numbers, Excel, or any  spreadsheet program that can open a .csv file. We’ve really enjoyed hearing its…

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Runkeeper & Research: The Keeping Pace Study

July 23, 2015

Yesterday evening I laced up my running shoes, connected my bluetooth headphones, turned on my Spotify playlist, and most importantly, hit “Go Running” on my Runkeeper app. About an hour later and I had run 6 miles at a decent pace of around 8 minutes per mile. And I knew this thanks to Runkeeper. Founded…

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Quantified Self Public Health: Stephen Downs on Building a Culture of Health

July 21, 2015

[Editor’s Note] This May we hosted our second Quantified Self Public Health Symposium in San Diego at the University of California, San Diego. With support from the Robert Wood Johnson Foundation we brought together 150 researchers, toolmakers, individuals from government institutes, and science leadership. During the meeting we had multiple conversations, talks, and show&tells that…

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Our Data, Our Health: Thoughts on using mHealth for the Precision Medicine Cohort

July 20, 2015

On January 30th, President Obama announced the funding of a possibly groundbreaking research program — The Precision Medicine Initiative (PMI). Launched with a $215 million investment in the President’s 2016 Budget, the Precision Medicine Initiative will pioneer a new model of patient-powered research that promises to accelerate biomedical discoveries and provide clinicians with new tools, knowledge, and…

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Diabetes Data For All

May 1, 2015

Howard Look is the Founder and CEO of Tidepool, a non-profit, open source development organization dedicated to reducing the burden of type 1 diabetes by building a platform that can integrate all diabetes device data in a single location. Most importantly, he is the father of a daughter with type 1 diabetes. Howard understands the…

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Communities, Climate, Environment, and Health

April 7, 2015

Today, we are participating in the “Data and Innovation at the Climate-Health Nexus” panel hosted by the White House Office of Science and Technology Policy. When we’ve spoken to people about this meeting the reaction we tend to receive is, “What does Quantified Self have to do with climate change?” It’s a valid question, and…

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Open Research, Open Data, Open Humans

March 25, 2015

“Open Humans aims to break down data silos in human health and research. We believe data has a huge potential to live and grow beyond the boundaries a single study or program. Our online portal allows members to aggregate data from the research they participate in. By connecting individuals willing to share existing research data…

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Announcing the QS Access Program

March 16, 2015

Self-knowledge through numbers. Personal meaning from personal data. These are the guiding principles of the work we do here at Quantified Self Labs. Through our editorial work, our events, and our support of a worldwide network of meetups we are focused on shaping the culture of personal data and it’s impact on our lives. We…

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Better by Default: An Access Conversation with John Wilbanks

March 10, 2015

John Wilbanks is the Chief Commons Officer for Sage Bionetworks. You may not recognize John’s name or the name of his organization, but after today, you may want to commit it to memory. On March 9, 2014 Tim Cook introduced us to the idea of ResearchKit and then turned it over to Jeff Williams who described the new…

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Quantified Self and Apple's ResearchKit

March 9, 2015

Apple’s announcement of ResearchKit is strong evidence that Quantified Self practices are emerging as a major influence on medical research and other forms of knowledge making. Apple talked about how their new effort focused on opening up health research is designed to combat five main current issues: Limited Participation Small sample sizes limit our understanding…

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What is in My Gut?

March 5, 2015

This past fall we learned about a unique study, conducted at Stanford University, designed to contribute to the understanding of the human microbiome. This study also has a component not common to academic research — data is being returned to the participants. Intrigued, I contacted the principle investigator, Les Dethlefson, to learn more. Ernesto: Tell me about…

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QS Access: Data Donation Part 2

February 25, 2015

In our Access Channel we’re trying to expose ideas, efforts, and insights about personal data access and it’s role in both generating personal and public insights. The last time we wrote about data donation we mentioned a few different projects that allowed you to collect and/or publish your self-tracking data for others to view and…

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Do It Yourself Diabetes

February 17, 2015

Dana Lewis and Scott Leibrand are the creators of the amazing “Do-It-Yourself-Pancreas-System,” also known by #DIYPS. We had a few question for them.

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QS Access: Personal Data Freedom

February 11, 2015

We are happy to welcome this guest post by Madeleine Ball. Madeleine is the Senior Research Scientist at PersonalGenomes.org, co-founder of the upcoming Open Humans project, and the Director of Research at the Harvard Personal Genome Project. She can be found online @madprime. The digital trails we create are becoming thick and personal. Increasingly, people choose to collect meaningful data…

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My Device, My Body, My Data

February 4, 2015

In 2007, after collapsing while rushing to board a train, Hugo Campos was diagnosed with hypertrophic cardiomyopathy, and an ICD (implantable cardioverter defibrillator) was implanted in his chest to track and regulate his heart rhythm. To his great surprise, he discovered that it was very difficult to gain access to the data being generated inside his…

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QS Access: Backing up HealthKit Data

February 3, 2015

As you may know, we’re very interested in how HealthKit is shaping and extending the reach of personal self-tracking data. Last week, during Apple’s quarterly earnings call, Tim Cook mentioned that “There’s also been incredible interest in HealthKit, with over 600 developers now integrating it into their apps.” (emphasis mine). This morning, we were alerted…

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QS Access: Precision, Patients, and Participation

January 30, 2015

This morning President Barack Obama announced a new Precision Medicine Initiative, a key $215 million piece of the proposed 2016 budget. Much has been written since last week’s State of the Union, when this initiative was first mentioned by President Obama. In brief, the initiative is an investment in new programs and funding initiatives at…

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QS Access: Data Donation Part 1

January 27, 2015

New sensors are peeking into previously invisible or hard to understand human behaviors and information. This has led to many researchers and organizations developing an interest in exploring and learning from the increasing amount of personal self-tracking data being produced by self-trackers. Even though individuals are producing more and more personal data that could possibly…

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QS Access: Self-Report & Quantified Self in Health Research

January 23, 2015

As part of our new Access channel we’re going to highlight interesting stories, ideas, and research related to self-tracking data and data access issues and the role they take in personal and public health. We recently found this expert report, published in the International Journal of Obesity, that tackles issues with the data researchers rely on for…