Tag: data access

BLOG

Our Data, Our Health: Thoughts on using mHealth for the Precision Medicine Cohort

July 20, 2015

On January 30th, President Obama announced the funding of a possibly groundbreaking research program — The Precision Medicine Initiative (PMI). Launched with a $215 million investment in the President’s 2016 Budget, the Precision Medicine Initiative will pioneer a new model of patient-powered research that promises to accelerate biomedical discoveries and provide clinicians with new tools, knowledge, and…

BLOG

Announcing the QS Access Program

March 16, 2015

Self-knowledge through numbers. Personal meaning from personal data. These are the guiding principles of the work we do here at Quantified Self Labs. Through our editorial work, our events, and our support of a worldwide network of meetups we are focused on shaping the culture of personal data and it’s impact on our lives. We…

BLOG

What is in My Gut?

March 5, 2015

This past fall we learned about a unique study, conducted at Stanford University, designed to contribute to the understanding of the human microbiome. This study also has a component not common to academic research — data is being returned to the participants. Intrigued, I contacted the principle investigator, Les Dethlefson, to learn more. Ernesto: Tell me about…

BLOG

QS Access: Personal Data Freedom

February 11, 2015

We are happy to welcome this guest post by Madeleine Ball. Madeleine is the Senior Research Scientist at PersonalGenomes.org, co-founder of the upcoming Open Humans project, and the Director of Research at the Harvard Personal Genome Project. She can be found online @madprime. The digital trails we create are becoming thick and personal. Increasingly, people choose to collect meaningful data…

BLOG

QS Access: Backing up HealthKit Data

February 3, 2015

As you may know, we’re very interested in how HealthKit is shaping and extending the reach of personal self-tracking data. Last week, during Apple’s quarterly earnings call, Tim Cook mentioned that “There’s also been incredible interest in HealthKit, with over 600 developers now integrating it into their apps.” (emphasis mine). This morning, we were alerted…

BLOG

QS Access: Exporting Uber Trip Data?

January 15, 2015

Quantified Self Labs is dedicated to the idea that data access matters. Moving forward, we’re going to be exploring different aspects of how data access affects our personal and public lives. Stay tuned to our QS Access channel for more news, thoughts, and insights. On January 13th Uber, a wildly popular and often scrutinized ride…

BLOG

Downloading Fitbit Data: Update

September 22, 2014

We’re posting a quick note today to let you know that we’ve updated our “How To Download Your Fitbit Data” post. It now included separate instructions for both the old and new versions of Google Spreadsheets. This is just the first in a series of planned updates. We hope to post additional updates to allow…

BLOG

QS | Public Health Symposium: Jason Bobe on Participant Centered Research

September 4, 2014

As part of the Quantified Self Public Health Symposium, we invited a variety of individuals from the research and academic community. These included visionaries and new investigators in public health, human-computer interaction, and medicine. One of these was Jason Bobe, the Executive Director of the Personal Genome Project. When we think of the intersection of…

BLOG

QSEU14 Breakout: Open Privacy

July 1, 2014

Today’s post comes to us from Laurie Frick. Laurie led a breakout session at the 2014 Quantified Self Europe Conference that opened up a discussion about what it would mean to be able to access all the data being gathered about yourself and then open that up for full transparency. In the summary below, Laurie…

BLOG

QSEU14 Breakout: Mapping Data Access

June 26, 2014

Today’s post comes to us from Dawn Nafus and Robin Barooah. Together they led an amazing breakout session at the 2014 Quantified Self Europe Conference on the topic of understanding and mapping data access. We have a longstanding interest in observing and communicating how data moves in and out of the self-tracking systems we use…