Tag: participation

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Better by Default: An Access Conversation with John Wilbanks

March 10, 2015

John Wilbanks is the Chief Commons Officer for Sage Bionetworks. You may not recognize John’s name or the name of his organization, but after today, you may want to commit it to memory. On March 9, 2014 Tim Cook introduced us to the idea of ResearchKit and then turned it over to Jeff Williams who described the new…

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Quantified Self and Apple's ResearchKit

March 9, 2015

Apple’s announcement of ResearchKit is strong evidence that Quantified Self practices are emerging as a major influence on medical research and other forms of knowledge making. Apple talked about how their new effort focused on opening up health research is designed to combat five main current issues: Limited Participation Small sample sizes limit our understanding…

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What is in My Gut?

March 5, 2015

This past fall we learned about a unique study, conducted at Stanford University, designed to contribute to the understanding of the human microbiome. This study also has a component not common to academic research — data is being returned to the participants. Intrigued, I contacted the principle investigator, Les Dethlefson, to learn more. Ernesto: Tell me about…