Tag: qsaccess

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Runkeeper & Research: The Keeping Pace Study

July 23, 2015

Yesterday evening I laced up my running shoes, connected my bluetooth headphones, turned on my Spotify playlist, and most importantly, hit “Go Running” on my Runkeeper app. About an hour later and I had run 6 miles at a decent pace of around 8 minutes per mile. And I knew this thanks to Runkeeper. Founded…

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Our Data, Our Health: Thoughts on using mHealth for the Precision Medicine Cohort

July 20, 2015

On January 30th, President Obama announced the funding of a possibly groundbreaking research program — The Precision Medicine Initiative (PMI). Launched with a $215 million investment in the President’s 2016 Budget, the Precision Medicine Initiative will pioneer a new model of patient-powered research that promises to accelerate biomedical discoveries and provide clinicians with new tools, knowledge, and…

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Announcing the QS Access Program

March 16, 2015

Self-knowledge through numbers. Personal meaning from personal data. These are the guiding principles of the work we do here at Quantified Self Labs. Through our editorial work, our events, and our support of a worldwide network of meetups we are focused on shaping the culture of personal data and it’s impact on our lives. We…

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Better by Default: An Access Conversation with John Wilbanks

March 10, 2015

John Wilbanks is the Chief Commons Officer for Sage Bionetworks. You may not recognize John’s name or the name of his organization, but after today, you may want to commit it to memory. On March 9, 2014 Tim Cook introduced us to the idea of ResearchKit and then turned it over to Jeff Williams who described the new…

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Quantified Self and Apple's ResearchKit

March 9, 2015

Apple’s announcement of ResearchKit is strong evidence that Quantified Self practices are emerging as a major influence on medical research and other forms of knowledge making. Apple talked about how their new effort focused on opening up health research is designed to combat five main current issues: Limited Participation Small sample sizes limit our understanding…

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What is in My Gut?

March 5, 2015

This past fall we learned about a unique study, conducted at Stanford University, designed to contribute to the understanding of the human microbiome. This study also has a component not common to academic research — data is being returned to the participants. Intrigued, I contacted the principle investigator, Les Dethlefson, to learn more. Ernesto: Tell me about…

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Do It Yourself Diabetes

February 17, 2015

Dana Lewis and Scott Leibrand are the creators of the amazing “Do-It-Yourself-Pancreas-System,” also known by #DIYPS. We had a few question for them.

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QS Access: Personal Data Freedom

February 11, 2015

We are happy to welcome this guest post by Madeleine Ball. Madeleine is the Senior Research Scientist at PersonalGenomes.org, co-founder of the upcoming Open Humans project, and the Director of Research at the Harvard Personal Genome Project. She can be found online @madprime. The digital trails we create are becoming thick and personal. Increasingly, people choose to collect meaningful data…

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My Device, My Body, My Data

February 4, 2015

In 2007, after collapsing while rushing to board a train, Hugo Campos was diagnosed with hypertrophic cardiomyopathy, and an ICD (implantable cardioverter defibrillator) was implanted in his chest to track and regulate his heart rhythm. To his great surprise, he discovered that it was very difficult to gain access to the data being generated inside his…

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QS Access: Backing up HealthKit Data

February 3, 2015

As you may know, we’re very interested in how HealthKit is shaping and extending the reach of personal self-tracking data. Last week, during Apple’s quarterly earnings call, Tim Cook mentioned that “There’s also been incredible interest in HealthKit, with over 600 developers now integrating it into their apps.” (emphasis mine). This morning, we were alerted…

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QS Access: Precision, Patients, and Participation

January 30, 2015

This morning President Barack Obama announced a new Precision Medicine Initiative, a key $215 million piece of the proposed 2016 budget. Much has been written since last week’s State of the Union, when this initiative was first mentioned by President Obama. In brief, the initiative is an investment in new programs and funding initiatives at…

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QS Access: Data Donation Part 1

January 27, 2015

New sensors are peeking into previously invisible or hard to understand human behaviors and information. This has led to many researchers and organizations developing an interest in exploring and learning from the increasing amount of personal self-tracking data being produced by self-trackers. Even though individuals are producing more and more personal data that could possibly…

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QS Access: Self-Report & Quantified Self in Health Research

January 23, 2015

As part of our new Access channel we’re going to highlight interesting stories, ideas, and research related to self-tracking data and data access issues and the role they take in personal and public health. We recently found this expert report, published in the International Journal of Obesity, that tackles issues with the data researchers rely on for…

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QS Access: Ian Eslick on Personal Experimentation

January 21, 2015

“Science is really about repeatability, about process, about discipline, about characterization, about controlling noise, and there are lot of different mechanisms that we can pull together to tell a story or inform a decision.”- Ian Eslick This past April we were lucky to host a meeting of researchers, toolmakers, science funders, and government representatives for…

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QS Access: New Data Privacy Legislation on the Horizon

January 16, 2015

“If we’re going to be connected, then we need to be protected. As Americans, we shouldn’t have to forfeit our basic privacy when we go online to do our business”.  – U.S. President Barak Obama In a speech this week at the the Federal Trade Commission President Obama spoke about new measures he hopes to…

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QS Access: Exporting Uber Trip Data?

January 15, 2015

Quantified Self Labs is dedicated to the idea that data access matters. Moving forward, we’re going to be exploring different aspects of how data access affects our personal and public lives. Stay tuned to our QS Access channel for more news, thoughts, and insights. On January 13th Uber, a wildly popular and often scrutinized ride…

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How To Access & Export MyFitnessPal Data

January 13, 2015

MyFitnessPal is one of the leading dietary tracking tools, currently used by tens of millions of people all around the world to better track and understand the foods they consume every day. Their mobile apps and online tools allow individuals to enter foods and keep track of their micro- and macro-nutrient consumption, connect additional devices…

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QS Access App: See your HealthKit Data in a Table

October 2, 2014

On Wednesday this week we learned that the QS Access app we submitted to the Apple store was approved. This means you can download the QS Access app on iTunes. We hope you’ll find it useful. Our app is a very simple tool for accessing HealthKit data in a table so that you can explore…

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Gary Wolf: Even when I'm active, I'm sedentary

October 2, 2014

We recently released our QS Access app, which allows you to see HealthKit data in tabular format. Not very many tools feed data into HealthKit yet, but Apple’s platform does pick up step data gathered by the iPhone itself. I have step data on HealthKit going back about two weeks. When Ernesto Ramirez and I…

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Access Matters

September 4, 2014

Someday, you will have a question about yourself that impels you to take a look at some of your own data. It may be data about your activity, your spending at the grocery store, what medicines you’ve taken, where you’ve driven your car. And when you go to access your data, to analyze it or…