Tag: ownership


We Need a Personal Data Task Force

December 11, 2013

Earlier today John Wilbanks sent out this tweet: Help me build a @23andme health data export app. $500 reward. Details at http://t.co/dC2ZX1F2OK — John Wilbanks (@wilbanks) December 11, 2013   John was lamenting the fact that he couldn’t export and store the genome interpretations that 23&Me provides (they do provide a full export of a user’s…


You Own Your Health Data

June 22, 2009

You “own” your own health data. That is clear if you generate it yourself, as self-trackers do. But even when others generate health data for you, you should have full access and “ownership” of it. They are only “borrowing” the data. But not every health care provider makes it easy to get cheap access to…