The Patient Voice by Heidi Dohse
February 25, 2016
From the Quantified Self Public Health Symposium
Heidi Dohse has been a heart patient since 1983. As someone living with a pacemaker, “one of the best quantified self devices,” she’s deeply interested in understanding how patient-generated data can play a role in improving the treatment and diagnosis of heart conditions. And as a member of the steering committee of the Health eHeart Alliance, she’s intimately involved with bringing not only patient data but the patient voice into the research environment through the Health eHeart Study. Currently, there are over 20,000 patients signed up to share their data with the study. “It’s not quite a million yet, but we’re going to get there.”
Watch Heidi’s video on Medium.