Personal Science Conversations #3: “The Patient Experience”
July 13, 2020
In the third episode of Personal Science Conversations, Sara Riggare, Gary Wolf, Thomas Blomseth Christiansen and Steven Jonas discuss how the personal science intersects with the patient experience. Drawing heavily on Sara’s experience as a person with Parkinson’s in the Swedish healthcare system, we look at how individuals can use their personal observations to inform their treatment.
- Sara’s paper on using patient-initiated self-tracking in Parkinson’s disease where she used a finger-tapping test to measure motor function.
- Sara’s paper exploring the opinions and experiences of people with Parkinson’s disease in Sweden regarding self-tracking.
- The slides from a presentation on the results of the mPower study on using consumer wearables to measure Parkinson’s disease.
- Dana Lewis and OpenAPS, mentioned by Sara.
- Study looking at patient-reported chemotherapy side effects in routine clinical care.