The Inspiring Story of Sophia

September 6, 2010

Karen Herzog and Richard Sachs of Sophia’s Garden and Valley Design Group were the last to speak. They stood before a hushed audience at the last Bay Area QS Show&Tell, telling the incredible, moving story of their late daughter Sophia.

Sophia had Niemann-Pick Disease Type A, a rare lysosomal storage disease. Karen and Richard coordinated her care themselves, keeping detailed collaborative records of Sophia and even running their own n=1 clinical trial. The smooth functioning of Sophia’s extensive, international community of care and her very life depended on accurate documentation – one small thing that went wrong could mean that she would die.

Watch Sophia’s inspiring story below.

Karen Herzog and Richard Sachs – Sophia from Gary Wolf on Vimeo.

Related Posts

Quantifying Family Caregiving

Ernesto Ramirez

May 18, 2015

Karen Herzog and Richard Sachs of Sophia’s Garden and Valley Design Group were the last to speak. They stood before a hushed audience at the last Bay Area QS Show&Tell, telling the incredible, moving story of their late daughter Sophia. Sophia had Niemann-Pick Disease Type A, a rare lysosomal storage disease. Karen and Richard coordinated...

QS15 Conference Preview: Katie McCurdy on Symptom Tracking with Spreadsheets

Ernesto Ramirez

May 6, 2015

Karen Herzog and Richard Sachs of Sophia’s Garden and Valley Design Group were the last to speak. They stood before a hushed audience at the last Bay Area QS Show&Tell, telling the incredible, moving story of their late daughter Sophia. Sophia had Niemann-Pick Disease Type A, a rare lysosomal storage disease. Karen and Richard coordinated...

What is a Quantified Self Conference?

Ernesto Ramirez

September 11, 2014

Karen Herzog and Richard Sachs of Sophia’s Garden and Valley Design Group were the last to speak. They stood before a hushed audience at the last Bay Area QS Show&Tell, telling the incredible, moving story of their late daughter Sophia. Sophia had Niemann-Pick Disease Type A, a rare lysosomal storage disease. Karen and Richard coordinated...